National Groups

Butterfly Thyroid Cancer Trust
PO Box 205
Rowlands Gill
Tyne & Wear
NE39 2WX

Helpline: 01207 545469
Email: enquiries@butterfly.org.uk
Website: http://www.butterfly.org.uk/

As a group dedicated solely to the support of patients with Thyroid Cancer they offer fellow thyroid cancer patients the use of the dedicated helpline to speak to someone who has had the disease, e-mail and telephone contact with group members to share experiences and access to reliable up-to-date written information about the disease. The helpline number is available Monday to Friday from 10 am to 4 pm. Outside these times, please leave a message on the answerphone and the group will get back to you as soon as possible.

British Thyroid Foundation
PO Box 97
Clifford
Wetherby
West Yorkshire
LS23 6XD

Head Office: (01423) 709707 and (01423) 709448

Website: http://www.btf-thyroid.org

The foundation provides support and information to those affected by thyroid disorders and raises awareness; to establish regional support groups and to raise funds for research; British Thyroid Foundation Cancer Group set up for information and telephone support to all affected by thyroid cancer.

Cancer Laryngectomee Trust
PO Box 618
Halifax
HX3 8WX
Tel/Fax: 01422 205522
Website: www.cancerlt.org
E-mail: info@cancerlt.org

Support for laryngectomees and their families, including a patient to patient scheme, newsletter and other information.

National Association of Laryngectomee Clubs
Lower Ground Floor
152 Buckingham Palace Road
London SW1W 9TR
Tel: 020 7730 8585
Fax: 020 7730 8584
Website: http://www.laryngectomy.org.uk/

Free information for patients and professionals, and a quarterly newsletter. There are also 93 local clubs around the UK and most hold a monthly meeting, usually with a professional on hand.

PINNT (Patients on Intravenous and Nasogastric Nutrition Therapy)
PO Box 3126
Christchurch
Dorset
BH23 2XS
Tel: 01202 481 625 (Monday to Friday, 9.30am to 4.30pm, answer phone at other times)
Fax: 01202 481 625
Email: pinnt@dsl.pipex.com

Website: http://www.pinnt.com/

PINNT (Patients on Intravenous and Nasogastric Nutrition Therapy) is a registered charity which serves to support both adults and children who require parenteral (complete feeding through a drip into the blood) or enteral (feeding by tube into the gut) nutrition therapy. Set up originally by patients from St Marks Hospital in London, to support fellow patients from hospitals all over the country who require nutrition therapy, to provide understanding and contact between patients and carers and to eliminate some of the problems that come with the treatment.

Their aims are:

• To promote greater understanding of the therapies amongst patients, potential patients and the medical profession
• Provide contact between patients, to try and eliminate some of the problems that come with treatment (particularly when it is carried out at home)
• Encourage membership, so that more services can be provided to patients
  

Changing Faces
The Squire Centre
33-37 University Street
London
W1E 6JN
Tel: 0845 4500 275
Website: www.changingfaces.org.uk

email: info@changingfaces.org.uk

Information and support for people, including adults and children and their families, who are affected by disfigurement. Aims to help people face disfigurement with confidence.

Let’s Face It
72 Victoria Avenue
Westgate on Sea
Kent
CT8 8BH
Tel: 01843 833724
Email: chrisletsfaceit@aol.com
Website: www.lets-face-it.org.uk

A support network for people with facial disfigurement. Enables them to share their experience and support and help one another by sharing information and advice. The organisations specialises in providing support for people with facial cancer.