National Groups

Beating Bowel Cancer
Harlequin House
7 High Street
Teddington
TW11 8EE

Tel:  08450 719300 (Lo Call rate)
Fax: 020 8943 0629
E-mail: info@beatingbowelcancer.org
Website: www.beatingbowelcancer.org

Nurse advisory service:
Tel: 08450 719301 (Lo Call rate)
Email: nurse@beatingbowelcancer.org
Advisory service hours: 

Monday to Thursday. 9.00am to 6.00pm.

Friday 9.00am to 5.00pm

Information and support from people who've had bowel cancer themselves. Leaflets about the symptoms of bowel cancer and about treatment for bowel cancer. Nurse Specialist available to provide medical advice, as above.

Advice / Support Line: 0800 8 40 35 40
Website: www.bowelcanceruk.org.uk
E-mail: advisory@bowelcanceruk.org.uk

Information and support for anyone who is worried about bowel cancer or who has been diagnosed with bowel cancer.

Confidential telephone advisory service staffed by trained staff including Specialist Nurses, available Monday to Friday 10.00 am - 4.00pm, answerphone at other times.

Colostomy Association
2 London Court
East Street
Reading RG1 4QL

Office Tel: 0118 939 1537
Helpline: 0800 587 6744 or 0800 328 4257
Email: cass@colostomyassociation.org.uk
Website: http://www.colostomyassociation.org.uk/

The British Colostomy Association provides support, reassurance and practical information to anyone who is about to have a colostomy or who already has a colostomy. Emotional support is given on a personal and confidential basis by helpers who have a long experience of living with a colostomy. Free leaflets and a list of local contacts available. Arrange visits in hospital or at home on request.

Bladder & Bowel Foundation (Formerly Continence Advisory Service)
SATRA Innovation Park
Rockingham Road
Kettering
Northants
NN16 9JH

Nurse helpline for medical advice: 0845 345 0165
Counsellor helpline: 0870 770 3246
General enquiries: 01536 533255

Email: info@bladderandbowelfoundation.org

Runs a telephone helpline for people with bowel and bladder problems. Can provide help in 10 languages. Provides advice on stoma products, and local continence advice services.

GIST Support UK

Patient helpline: 0300 400 0000 

Website: www.gistsupportuk.com
E-mail: judith@ndrobinson.plus.com or d.cook@sheffield.ac.uk or terryd67@btinternet.com

Telephone support, e-mail support, and one-to-one counselling for patients with gastrointestinal stromal tumours (GIST), and for their families. Members have extensive experience of taking Glivec, Sutent and other new treatments.

NET Patient Foundation
Enton Mill
Enton,
Surrey
GU8 5AH

Tel: Catherine Bouvier: 0800 434 6476
Email: catherinebouvier@btinternet.com
Website: http://www.netpatientfoundation.com/

The NET Patient Foundation supports patients and their families and helps them to improve their understanding of neuroendocrine tumours (NETs). A  professional helpline, patient forums, support group meetings and a number of educational booklets and handbooks are some of the services the group offers.

IA
(The Ileostomy and Internal Pouch Support Group)
Peverill House
1-5 Mill Road
Ballyclare
County Antrim
BT39 9DR

Tel: 0800 0184 724 (free) or 028 9334 4043
Fax: 028 9332 4606

E-mail: info@iasupport.org
Website: http://www.iasupport.org/

A charity whose main aim is to help people who have to undergo surgery which involves the removal of their colon (colectomy) and the creation of either an ileostomy or an ileo-anal pouch.

Ochre
c/o MacRoberts
152 Bath Street
Glasgow
G2 4TB

Telephone: 0800 822 3370
Website: http://www.ochre-charity.co.uk/
E-mail: committee@ochrecharity.co.uk

Raising awareness of oesophageal cancer among politicians, medical staff and the public. Information is provided via the website at www.ochre-charity.co.uk

Oesophageal Patients Association
22 Vulcan House
Vulcan Road
Solihull
B91 2JY
Tel: 0121 704 9860
Website: www.opa.org.uk
E-mail: enquiries@opa.org.uk

Information leaflets on nutrition and living with oesophagectomy, and support for people affected by oesophageal cancer. Helpline Monday to Friday between 9.00 am and 3.00 pm.

Pancreatic Cancer UK
3rd Floor
Market Towers
1 Nine Elms Lane
London
SW8 5NQ

Tel: Salma Mohamed: 0203 177 1686 (7-9pm)

Email: enquiries@pancreaticcancer.org.uk

Website: http://www.pancreaticcancer.org.uk/

A national charity committed to cancer patients through information, support, awareness and research funding. We currently provide contact by email and/or telephone both with central coordinators and others in a similar situation (patients/relatives/carers).

PINNT (Patients on Intravenous and Nasogastric Nutrition Therapy)
PO Box 3126
Christchurch
Dorset
BH23 2XS
Tel: 01202 481 625 (Monday to Friday, 9.30am to 4.30pm, answer phone at other times)
Fax: 01202 481 625
Email: pinnt@dsl.pipex.com
Website: www.pinnt.com

PINNT (Patients on Intravenous and Nasogastric Nutrition Therapy) is a registered charity which serves to support both adults and children who require parenteral (complete feeding through a drip into the blood) or enteral (feeding by tube into the gut) nutrition therapy. Set up originally by patients from St Marks Hospital in London, to support fellow patients from hospitals all over the country who require nutrition therapy, to provide understanding and contact between patients and carers and to eliminate some of the problems that come with the treatment.

Their aims are:

• To promote greater understanding of the therapies amongst patients, potential patients and the medical profession
• Provide contact between patients, to try and eliminate some of the problems that come with treatment (particularly when it is carried out at home
• Encourage membership, so that more services can be provided to patients

PMP Pals Network
c/o Gabriella Graham
Post Office Box 6484
Salinas CA 93912 USA

Email:  pmppals@yahoo.com
Website:   http://www.pmppals.org/

The PMP Pals' Network is a resource, referral and support program for patients, and their family caregivers, affected with Pseudomyxoma Peritonei, Peritoneal Carcinomatosis, or Appendix Cancers in general. Serving patients and their families in 44 countries and in 12 languages, they provide "Pal Mentors" in the UK.

"Pal Mentors" are experienced patients and family caregivers who have successfully completed medical treatment and share resources in a positive and optimistic manner.

A subscription membership provides "Pals" with seasonal newsletters, monthly email bulletins, and personal communication services, providing patients with the opportunity to communicate via telephone, email, postal mail, personal visits and SKYPE.

For more information, please visit the website.